Danny and Smarty spotted in Newtown.
‘Working in cancer care makes it harder – I get attached to everybody because I like people. You always get that one or two that you just get attached to a little more and if anything happens to them, it just affects you that little bit more. It gets hard sometimes and you know exactly when they leave here what the next steps are going to be.
‘It’s hard and I try not to but as a human, I get attached to everybody. That could be my downfall.
‘Sometimes I would go and see patients when they get moved to palliative care but not always. I don’t go to funerals of my patients unless I’ve known them for a very, very long time. I’ve been to about 3 or 4 when I’ve been invited by the family but I don’t routinely go to them.
‘The most rewarding part is just the patient saying thank you – that is the best part of it. The reward is knowing you’ve helped that person – not just them but their family as well.
‘I always say to people to do what you want when you want because you never, never know what happens tomorrow.’
‘It’s a tough place to work but a very positive place even though there is this concentration of grief. I hope to bring to someone like Maria, something that she would get in no other hospital which is that support and that love which comes in many forms – kindness, compassion, support and lot of things we take for granted – like our art programs.
‘The fact that she can just wheel herself down and play on the piano or join in on what everybody else is doing – listening to the music and the choirs. It’s like its own little world here – a world of kindness and hope if you like.
‘I think that’s what I bring because I’m a reminder of what Chris went through and what we as a family went through and so I totally understand what everyone else is going through.
‘My role as Patient Advocate is a way of supporting the vision which is patient-centred care and giving people hope.’
‘When they told me I had cancer, it was really painful – like my whole world shattered because first of all I am young; I am 29 years old.
‘I was diagnosed with Stage IV Colo-rectal Cancer. I had no idea; no idea at all. Because of my baby that’s when they figured out that I had cancer because it was really painful like I wanted to die – it was too much pain.
‘I heard the news (about my cancer) on September 12th. And then two days after she was born at just 32 weeks. They decided to take out the baby to see the real diagnosis of my sickness. When she was born, I felt really, really happy because my baby is healthy after all the antibiotics and medication.
‘I came to Sydney in April 2017 from the Philippines. I had like a training program in culinary – to be a chef. It’s like an internship. And then I got pregnant with my baby.
‘I am alone here in Sydney. My husband is here but I don’t have relatives here. My husband tries to visit every day but it depends on his schedule because he’s a pastry chef.
‘I like it here at Lifehouse. They really focus on you and give the best care that you can receive. They promised me that I will have free treatment here because we don’t have money and my husband is the only one who is working and it’s not enough. So in the Philippines it’s really expensive. Every session you go. I don’t know how much but it’s really expensive.
‘I just want my baby to grow strong. You know, like a really tough girl. Here at Lifehouse, it’s like giving me hope. The staff are really nice and kind to me. Hope is really important. It’s the only word I’ve been holding on to.
‘Sometimes I’m really losing hope. Every time I see my baby and my husband, it builds my hope again and again. So I’m thankful that they let them stay here – my baby and my husband.’
‘I have Stage IV cancer – it’s under control at the moment. I value every moment. I value the time I’ve got. I value friends and just the beauty of the world around me. You don’t have to go out in to the countryside to see beauty. There’s beauty here. There’s beauty everywhere. I seem to notice it more. I notice things more now. I don’t need to do spectacular things. I get pleasure out of very simple things in life.’
‘They (Department of Education) told me in later years I wasn’t to hug the children and I said, “Well, it will be a long day before I can’t hug somebody.”
‘I can’t stop children from coming up and hugging me. I said that I won’t stop hugging them. I never did.
‘You know all children, doesn’t matter which ones they are, they all need love. You have to give it to receive it. I doesn’t matter how much their mums and dads love them, you can always give them a little bit more because everybody needs love and you can always do with a little bit extra of that.
‘Children are so hungry to be loved. That’s all most of them wanted – to be understood and loved. Because that’s the real main thing in life. Nobody listens much you know – they talk but a lot of people don’t listen to you, you know?’
‘I’m a Sista Girl from the Tiwi Islands. A Sista Girl is like a woman that is trapped in a man’s body. I feel more like a woman and am more attracted to a man than a woman.
‘There are a lot of Sista Girls in the Tiwis. We all support each other and help each other a lot. We look after each other when we have issues and problems. When a Sista Girl is depressed or feeling down, we go there and have a talk to her and make her feel like she is loved.
‘Sometimes we find that some people don’t accept us. Somehow we’ve managed to live with it but we know that we have other for support as well and that people that love us.
‘I chose to come to the Mardi Gras in Sydney because I want to find freedom and acceptance. I also want to get the message out to other Sista Girls not to feel afraid or alone. I want them to know that there are other Sista Girls out there that are like them as well.’